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Thursday, July 22, 2010

EEG Results

Bella had her EEG which went ok despite the horrible sedation. She was knocked out for a full 16 hours but was quite chirpy when she eventually woke. There was another baby in the ward you had Measles and was very sick. Our doctor advised us very strongly to give Bella the measles vaccine and I think I did it because of being in the hospital already and being super stressed out. I wish I didn’t do it because it goes against all the work we have been doing from a Biomedical perspective. She also ended up having a reaction with temperatures but otherwise was ok.

Dr T phoned me back yesterday with her EEG results and said it was all clear. Yay!! Her background waves were good and no seizure activity. So now we need to start considering what to do with her anti-seizure medicines.

Bella’s iPad arrives this weekend with the Peacocks all the way from London which is super exciting. I just need to get the Wi-Fi network setup in our house because there are no 3G services for iPad’s in South Africa yet.

I have stopped smoking again… lets hope it last this time.

Wednesday, July 7, 2010

The 8th of July again

Last year on the 8th of July I wrote this post : 8th of July 2009

Its that time of year again and in line with true Bella style it will be another auspicious day. We are going into Sandton Clinic for a 12 hour overnight EEG. The purpose of the EEG is to see how Bella is doing and if all is good to possibly start weaning either her Tegretol or Keppra. The weird thing is that it was the 8th of July 2008 that her seizures stopped and we will be in the exact same hospital room as we were then. I am taking it as a good omen but am still quite freaked out about the thought of a trip down memory lane....

Last year Bella sat up from lying down for the first and when I look back to that milestone and where she is now I see how far she has come in the last year. It really is amazing.

My thoughts are of course on little Ruve and her family and hopeful for what the next year brings.